Sunday, February 22, 2009

See ya in a week or two...

I have no idea when I will next feel up to posting. Everytime I do a "I'll be offline for a while" post, I end up posting a few more times before I really go. It's like trying to get out of the house on those mornings when you keep leaving your wallet, your car keys, your books, etc.

On Tuesday, I will have my surgery - both breasts, ovaries, fallopian tubes. I don't know when I be ready to sit up in front of the computer and type. I'm guessing it'll be at least a week. But, you know, it might be less time, or it might be more time, depending. So don't worry if you don't see me here - it just means I'm recuperating. I'll be back to tell you about it.

Meanwhile, I am hopefully done with my surgery nightmares and nearly done preparing at work for my absence. I have managed to catch a cold, which will hopefully not upset the surgery schedule - I'm hoping I can be done with enough of it that we can proceed as planned (thank you, Zicam!)

See you all soon.
PF

Thursday, February 19, 2009

My head.

Thursday, February 12, 2009

Media Education Foundation distributes "The Price of Pleasure."

I promised back in November that I was going to blog about "The Price of Pleasure," and I don't think I ever did. While I appreciated the film's critique on some levels, I was left disturbed by several elements of the film itself.

The main issue I have with this film is that it is manipulative. I use that word very intentionally: it is a film with a particular political argument to make, and yet it presents itself as a neutral exploration of the porn industry. When porn performers are included, their words and images are carefully shaped to make them appear either insincere (acknowledging some criticisms of the industry but continuing to work in it), unintelligent (not seeming to understand that they are exploiting / being exploited), and/or selfish (being concerned with personal success and not the political implications that the filmmakers want to present). Several of these performers, and notably, Ernest Greene, have protested the way they appear in the film and contrasted this to the "unbiased" presentation of the issue that they were promised by the filmmakers.

The film includes a few sensationalized dramatizations with voice-overs of women talking about their experiences with a partner who used pornography. These dramatizations are badly done; they reminded me a bit of the ads for products like the Snuggli or a specialized kitchen tool, in which actors are shown having tremendous difficulty talking on the phone while keeping a blanket on their shoulders, or trying and failing to peel a carrot without cutting themselves. The music employed throughout is discordant and unsettling, and it is used to make the viewer associate negative emotions (the music particularly evokes anxiety and fear) with the images that are being shown. Further, with the exception of the porn performers and clips from some porn films and magazines, there are no interviews with women who use porn or whose partners use porn and who feel empowered or at least NOT disempowered by it. This is not because such women do not exist or are hard to find. This is because the film has a particular message - porn exploits women and teaches men to abuse women - and these other perspectives do not fit into this message and would undermine it.

What all of this means to me as a feminist and educator is that the film is not going to be useful, generally, to me in the classroom, and that it would best be paired with additional perspectives to round out the experience for students.

What motivates me to write about it today is that I received a catalog from the Media Education Foundation, an organization that has distributed some excellent films (the "Killing Us Softly" series; "Wrestling with Manhood: Boys, Bullying & Battering") and some pretty mediocre ones ("What a Girl Wants"). MEF films do present pornography as exploitation, so it is not the affiliation that surprises me, but the fact that "The Price of Pleasure" continues to be presented as something that it is not. For example, Michael Kimmel, who I otherwise respect a great deal, is quoted in the MEF catalog as saying (taken from a review or cover blurb, I believe) : "I've been waiting for a film about pornography that was neither sanctimoniously scolding nor callously celebratory. And, finally, there is THE PRICE OF PLEASURE." The film's description reads: "the film moves beyond tired and often paralyzing liberal-versus-conservative debates to offer a nuanced take on the cultural implications of pornography."

Ladies and gentlemen, "The Price of Pleasure" is sanctimoniously scolding and fails to move beyond tired and often paralyzing debates of any kind. There is no nuance in this film. While it is true that it does "forc[e] us to consider how pleasure and pain, commerce and power, liberty and responsibility have become intertwined in the most intimate areas of our lives," it does so without giving us enough information to *fully* consider this information.

What I've been waiting for is a film that presents arguments from a variety of perspectives on this issue. I'd like to see a film that does not so obviously have a stake in the porn - anti-porn war, but rather one that presents arguments from sex workers who are working in the industry and allows them to share both the good and bad of their experiences; from people who use or have used porn and can share with the viewer a range of experiences from abuse and addiction to empowerment and sexual access; from people who have important cultural critiques of porn and sex work; from people who are working to legislate against sex trafficking and who see porn as inherently connected to this problem; from people who argue that trafficking is best approached inclusively and who advocate labelling sex work as "work"; from people who have experienced what unionization, or legalization, or decriminalization has meant for sex workers, whether it be good, bad, or in-between; from other people whose perspectives I am forgetting as I write this.

In the meantime - Renegade Evolution, Ernest Greene, folks who are working in this industry - if you are reading this, I hope that you will consider making your own film, specifically for use in the Women's Studies classroom...

Wednesday, February 11, 2009

My sagging social life.

Today, I had coffee with a friend and then met some others for drinks after work. I had a really good time. Being with them reminded me, yet again, that one of the side effects of chemo that is less visible is that there is less energy and time for one's social life. I have really missed that.

Tuesday, February 10, 2009

Obama's controversial middle ground.

The other day, the local paper ran a headline that went something like, "Obama takes controversial middle ground in abortion debate." What he was doing was focusing on the reasons that women need abortions in the first place, hoping that by concentrating on addressing these problems, he could reduce the number of abortions. This is not a bad thing to do; when I lived in SD, I met an amazing woman who raised money for women who needed abortions, and she said that she very frequently heard, "I just can't do it - I have two kids already and my partner just walked out, and I don't have the money." So, certainly, I support all of the things that will pull women and children out of poverty and grant them access to health care and education and help them to prevent unwanted pregnancies - all the things the Republicans oppose, in other words.

But here's what's weird to me. In SD, Obama's approach was pretty much the same as the pro-choice activist approach. In much of the rest of the country, however, this stance is perceived as being not committed enough to choice. And even more interesting - in SD, the anti-choice movement was completely opposed to such an approach, while in the nation, at the moment, it seems that the anti-choice folks are hesitantly encouraged by Obama's focus (though they are far from happy about some of his other moves).

I don't really have anything to add here that I haven't said already, many times, but I thought this was interesting.

Friday, February 06, 2009

Unarmed people killed by police.

A commenter shared this with me. Please check it out.

I don't know yet if I agree with T that police officers shouldn't carry guns, but I'll admit that it really changes my own perspective to think about what it would feel like to know that I myself might be likely to be killed by a police officer. I don't walk or drive down the street living in that reality. I know of a female college student who was beaten up at a protest by a cop who was known for violent behavior. I had a student who was raped by a police officer at gunpoint. A friend of mine watched a cop shoot and kill a puppy during a power struggle because he wanted to show he was in control. So I have a healthy fear of the police, but at the same time, I also live in a white body and I am the person that cops are supposed to be protecting and I know this subconsciously. And to protect me, don't they need to have guns? This is what is going on, almost below the radar, in my head when I think about taking the guns away. And that is a hard thing to admit.

But Black men are at tremendous risk from the justice system, and at some point we have to ask ourselves as a society, at whose sacrifice are some of us being protected by cops having guns? And then it becomes pretty obvious that that's exactly what's going on - we are sacrificing people of color so that whites can have an illusion of safety. (Not unlike our foreign policy, actually.)

I'm also thinking about what happened here this past fall with the RNC and how quick people are to use weapons when they have them. This certainly isn't unique to police officers, but it does give me pause.

Thanks, T, for making me think about this in a different way.

The chemo is having one last go at me.

I've had a pretty good run with the chemo and really feel like I have no business complaining. But this DAMN TAXOL has decided to mess me around this last time as much as it can.

I had my last chemo one week ago, and the pattern has been that I get it Friday and have fairly severe aches, mostly in my legs and feet but in other places, too, Sunday - Wednesday, with Monday and esp. Tuesday being the worst. It was the worst the first time, better the next two times, and a little worse this last time. But what sucks is that, this time, having made it through the achiness earlier in the week, I'm getting aches in my fingers, hands, wrists, and forearms yesterday and today and probably tomorrow unless I get lucky. For a while, I was really worried it had to do with typing, and I have a ton of papers to finish grading online. But then, I noticed some hives on my leg (Taxol can also cause hives) and figured that it was all the Taxol. Another helpful symptom is that the pain goes away for a bit and then comes back - if it were typing-related, I think it would either be more constant or happen when I held my hands in certain positions. And the Taxol-related pain has done this disappearing every so often (which is actually quite helpful).

I'm glad to be done with this. Though apparently, the medication I'll be taking in a few months can cause some of these same symptoms. Yay!

Perspective and possibility.

So, as I contemplate my upcoming mastectomies, I'm finding it very helpful to broaden my perspective. Hopefully, this is not an exercise in cis privilege. But I've found trans theories and writings to be extremely helpful and soothing. From the perspective of a cis woman with cancer, mastectomy is not a positive thing. From the perspective of a transman, though, it could be liberating. And I've found it really helpful to reflect on this and to think that the same surgery that I'm having might be something that someone else would be happy to have. Not that I'm not happy to have it - I think it's a pretty good trade. But I mean, it changes the way I see the surgery to recognize that the reaction to it is really about perspective.

I'm thinking about doing a ritual before my surgery. I am someone who does not participate in ritual on a very regular basis, but when big things happen, it's important to me that they be marked in a meaningful way. I think by claiming this as a ritual moment, I'm helping shape my own understanding of it as well as my healing.

Interestingly, when I did a Google search on ritual and mastectomy, I came up with a few links to Jewish poetry and mikvah rituals. I started thinking about a mikvah - a ritual bath for Jewish women. The technical problems here are that I'm not so much Jewish as JewISH, so I'm not sure that the Mikvah Association here will let me in. A friend suggested I do it myself in a friend's hot tub, but some of the side effects of the chemo are exacerbated by hot water. I decided to call my oncologist to ask about this. I wanted to know if I needed to worry about making the side effects worse or about my lowered immune system in either a hot tub or a public facility (that, I'm guessing, wouldn't have chlorinated water).

I called and left a message for a nurse to call me back. How do you leave a message for something like this, when you know that the person you're leaving the message with is not going to understand it at all? This is Minnesota, after all, and while there is a sizeable Jewish population in the area, the odds that the person answering the phone was Jewish were pretty small. So I said I had a question about baths. "A bathing question?" the receptionist said. "Yeah," I said. (I wonder what on earth she thought.)

The nurse who called me back was not the nurse who I had left the message for. The nurse I'd left the message for is one I have had a good relationship with - and she's pretty quick. The nurse who called me back was Weird Nurse, the same one who freaked me out prior to my chemo treatments by droning on and on about nausea.

Weird Nurse was not terribly helpful. She was concerned that I could burn myself because the numbness I'm experiencing makes it hard for me to know the temperature of the water. So I assumed the hot tub was out, and asked about the immune system issues. She told me to be very careful, which confused me, because if I'm going to be immersed in a pool of water, how exactly am I going to be careful? And of what? I needed some more specific advice.

So I said, "look, could you just tell my (Jewish) oncologist that I am thinking about doing a mikvah...no, a mikvah..m-i-k...no, m-i-k-v-a-h...MIK - VAH...right, tell him that, I'm pretty sure he'll know what that is, and ask him if that's a problem given my immune system. Thanks."

So I get a call back and she says, "Wow, I had to look that up. You're right, he knew what it was."

And I said, "And what did he say about the immune thing?"

She said, "He said be very careful."

I said, "Um, of what? The water temperature?"

She said, "The water temperature primarily."

I got off the phone and told Mr. Plain(s)feminist, who said, "Clearly, G-d doesn't want you to do this."

So I may hold off on the mikvah for now. But I'm still in search of a ritual.

Wednesday, February 04, 2009

The worst review ever.

I happened to read a theater review yesterday because it was near me and I needed something to read - and I think this is, hands down, THE worst review of a play that I have ever read. Here are the opening two paragraphs:

"Planting Shelly Anne," the newest offering from the Workhaus Collective, is a play that ought to be buried deeply in the ground.

Jeannine Coulombe's narcissistic, jumbled, 95-minute whine-a-thon is dreadful in almost every respect: Its storytelling is bloated, infuriating navel-gazing exacerbated by a playwright in love with her own voice. Its staging is affected and ineffectual. The performances are the best thing about it, but — obviously — that's not saying much.


There are many, many other negative comments in this review, but the one that stands out is this: "John Riedlinger and young Renee Roden do no harm completing the cast as Shelly Anne's inattentive husband and bratty, neurotic daughter."

I wonder, is it really conscionable to write such a nasty review? On the other hand, was the reviewer left any choice? I felt bad for the playwright and director (the actors mostly seemed to be treated more kindly, as the critic focused his displeasure on the staging and the play itself).

The entire review can be found here, for now.

Saturday, January 24, 2009

Mammogram misinformation.

I was shocked to read this on a blog I link to:

No, I refuse to have a mammogram.

It’s a dirty little secret of the medical profession, with all the scare talk and big shiny posters about how “mammograms save lives”, that the health benefits of mammograms are not scientifically proven. There is no proof that they save any lives at all. It is, however, certain they make some people a lot of money.

Furthermore, breast self-exams - you know, that thing we’re supposed to do every month and feel guilty if we skip? Doesn’t help us either.


You can click on the above to see the links she includes as evidence. Here's what else she says:

A common way to justify the nerve-wracking, expensive, fear-inducing body self checks and mammograms is for doctors to repeat ad nauseam “Studies prove women who get these exams survive an average of two years longer than women who don’t!”

BUT BUT BUT:

Think about this logically.

If your cancer is detected two years earlier than it normally would have been… you haven’t really lived two years longer. Instead, what you’ve “gained” is two extra years of medical treatments that fail to save your life.

In other words, as the above articles show, “early detection” - that is, detection of cancer at a stage a woman wouldn’t ordinarily notice any differences in her breasts - does not save women’s lives.

Yet a slick, brilliant, fear mongering media campaign has been aimed at us for years. “Mammograms save lives!” “Early detection saves lives!” “Every woman over 40 needs to have a mammogram!”

All lies.

This, combined with the constant stories from women who have them on how uncomfortable, painful, and humiliating mammograms are, make me suspect the entire purpose of this mammogram scam is to sexually torture women and get away with it. I can’t tell you how many times people have looked at me - I am very large breasted - and made some comment like, “Wow, it sure is gonna hurt you when you have to go get a mammogram!” They always look shocked when I tell them I have no intention of doing so. “But but but - you HAVE to!” People with no reason to have any interest in my health get upset when they discover I will not fulfill their sadistic fantasy of having my large breasts clamped into a giant vise and irradiated. It reminds me of the sort of sadistic glee I would see on people’s faces when they would look at my hugely pregnant stomach and tell me the worst labor horror stories they could recall.


I'm not going to go digging around for stats (and I would really appreciate if, if you would like to do so, you don't post them here), but I will share my own experience, which is diametrically opposed to the above claims. I will also note that I've been working with some of the most esteemed breast cancer specialists in the country, and I think they would take issue with some of the above.

I don't really know that mammograms or self-checks are effective in picking up breast cancer. If you have dense breast tissue, as I do, those buggers can hide out. My cancer wasn't easily identifiable from a mammogram, though the mammogram indicated the need for further tests, which eventually led to an ultrasound guided biopsy and a cancer diagnosis. And, while I did eventually find a lump and may well have found it sooner had I been doing self exams, it's also true that the lump was likely present but missed at my annual exam in June.

But I will also point out that I have large breasts AND I have had quite a few mammograms. News flash: in my experience, they don't hurt. Or, rather - if they hurt, then 1) the technician is incompetent, and/or 2) you need to cut out the caffeine before you have your mammogram. But the mammogram, just as a procedure, is not inherently painful, just as a cervical swab is not inherently painful, though it can be if you have a condition that makes your cervix sensitive or if you have a GYN that isn't well-trained. Women should be angry that mammograms haven't always been sensitively and carefully administered, certainly, but recently, it seems that they have become a better experience for many, if not most, women.

But none of this really frustrated me about Amananta's post. The thing I found most upsetting was her assumption that women with breast cancer are going to die of breast cancer. Of course, when I was diagnosed, that's what I immediately assumed. And, of course, I still worry about that. But what I'm learning is that more women survive it than don't. There are some oncologists who even talk about being able to cure it (which is the hope for me), and my surgeon talks about it as a chronic condition, like diabetes, that can be treated and managed for years and years and years and years (and I'll take that, frankly). But a huge factor in survival is early detection, and that's what the self-checks and the mammograms are all about trying to do.

Determining what health care services one will or will not avail oneself of, just like determining one's course of treatment for a particular illness, is a very personal thing, and I support Amananta's right to make these decisions for herself. What makes me sad in reading her post, though, is that the women who are at greatest risk are the women who don't have access to healthcare, women who can't afford mammograms or don't have access to them. Women of color, particularly African American women, are at enormous risk. Yet Amananta has revisioned mammograms as a plot to make money at women's expense, as a form of "sexual torture," and such a ludicrous statement seems to me to make light of the struggles that women with breast cancer or who are at risk of breast cancer face (not to mention making light of actual sexual torture).

There is plenty to be critical of when it comes to the Breast Cancer Awareness Industry - absolutely. But spreading misinformation about breast cancer is not an ethical response.

Saturday, January 17, 2009

Because I enjoy making myself crazy.

Let me start by saying that the chemo has caused me to have some embarassing effects that I won't go into here, but that have necessitated me visiting my GYN once already and twice showing my nether regions to male doctors who are not GYNS. In part, this is one of those stories. Don't worry, I won't go into detail. I seem to have recovered my modesty after that post a while back that I'm not linking to. Anyway.

So, I noticed on Monday night that something was going on that needed to be checked out, and I was a little freaked out about it because it was not something I'd experienced before, and anytime that happens on any part of my body, I usually worry that I have something that will be a big hassle, require many doctor visits (potentially embarrassing ones), be very uncomfortable, and difficult to get rid of. I determined to call my GYN the next day, which was distressing, because my GYN is actually part of a huge healthcare system that does not give me good care and that in fact caused my great trauma in the process of diagnosing my cancer. I need to get out of that system, because the way it's set up, I can't even call my doctor in a pinch - I need to call a central appt. line for an appt., and I get whoever is available when time is of the essence.

Anyway. Meanwhile, sometime last weekend when my immune system was at its weak point, I came into contact with some sort of stomach/intestinal bug. I discovered its presence at 5:45am on Tuesday morning, hours before my first class of the semester (which I cancelled, because there was no way I could make it there with various stuff coming out of both ends of my body).

As stomach/intestinal bugs go, this wasn't so bad. However, because I usually don't get the intestinal part along with it, and because my stomach, while not *horribly* nauseated and upchucky, was still nauseated and upchucky, I simply was not able to keep the fluid balance in my body at a healthy level. So, I got dehydrated. But I didn't notice, because I was just aware of being thirsty, of sipping my ginger ale, mildly aware of "A Mighty Wind" on t.v., and of sleeping much of the day. I did notice that every time I got up to use the bathroom, I felt dizzy, but I attributed that mostly to the fact that I was lying down all day.

It did dawn on me to take my temperature, and it was over 100.5, which meant that I had to call my oncologist's office to report in. By the end of the day, my temp was up to 101.7, and I was told to report to the ER for IV fluids and some tests to be sure that there weren't any other infections going on. I realized how awful I felt when I contemplated getting up, dressed, walking down the stairs, sitting in the car, and going to the ER - not nauseous, but just completely drained and exhausted.

Once there, my fever was 102, and they tested pretty much everything they could test. Everything was fine - I had a stomach/intestinal bug, as it turned out. I began to feel much better after they gave me the fluids and some cold water to drink. They did forget about me for about an hour, while I was lying down on my back, weak, with a blood pressure cuff on one arm and a (stopped) IV in the other, but I managed to reach the call button after listening to the nurses talk for a while about their favorite vacation spots.

But while I was there, I mentioned the embarrassing thing, because I was worried that it was some sort of infection that might be causing all the other problems. So, the male doctor who was not a GYN (as opposed to a male doctor who IS a GYN, which is a different story), and his male resident (also not a GYN), took a look, and I managed to not feel too uncomfortable. They didn't see what I saw and told me not to worry about. So I felt better until a couple of days later when I noticed that it was indeed there. And now I was back to square one. By then, my fever was gone and I was back to normal, so I knew at least it wasn't a dangerous infection. But I still had to deal with the GYN appointment. I made a mental note to get a referral when I saw my oncologist the next day.

Now that I wasn't worried that my vagina was going to kill me, I relaxed for a bit and read the paper...about brain aneurysms. Turns out that three of the symptoms of brain aneuryms are - symptoms I have! So now, I had something new to worry about.

I came armed with the newspaper to see my oncologist. When I mentioned aneurysms, before I could even point to all the symptoms in my handy article, he said that if I had headaches, that was reason enough to go for a brain MRI, and that he didn't think I had an aneurysm, that the symptoms (which he patiently let me describe) could be caused by numerous other things, but that if it would make me not worry, he'd be happy to have me go for an MRI. (And so I shall).

I figured I'd just mention the embarrassing other issue and tell him that I was planning to follow up with (sigh) the GYN, and maybe ask for a referral. Instead, he jovially said, "well, let's take a look at it. I AM a doctor, after all. That IS my job." So male doctor number 3 who is not a GYN took a look, but with a lot more capability and sensitivity than male doctors #1 and 2 who were not GYNs, and this time, I trusted his call that it was nothing to worry about because he saw exactly what I saw.

So - no worries below the belt, no worries above the neck (probably - I feel relieved just knowing that we'll be checking), and the space inbetween is responding well to chemo.

And I am not reading the paper anymore.

Sunday, January 11, 2009

Do something about the BART shooting.

Oscar Grant, a Black man, lying face down, subdued, surrounded by (apparently white) cops, and with one officer's knee on his neck, was shot in the back and killed. The cop didn't even draw his gun until AFTER Grant was face down with the cop's knee on his neck.

As Kevin says at A Slant Truth:
What the hell did this cop think? That Grant was going to all of the sudden summon his super-human negro strength ala Hancock and suddenly toss the cop with his knee on his neck a good 200 yards and go flying away?

More from A Slant Truth:

New Video of BART Shooting is Clearest Yet

5 Things You Can Do Right Now about The Oscar Grant Shooting

Here's what I'm thinking. What do you think the story would be if there hadn't been witnesses? Need I even ask that question?

Friday, January 09, 2009

Too far.

The other day, I received this email:

Twin Cities Solidarity with Israel Gathering -
Sunday, Jan. 11

The United Jewish Fund and Council expresses its solidarity with the people of Israel during Operation Cast Lead against the Hamas terrorist group in the Gaza Strip. Please join the UJFC for a community-wide rally to show our solidarity with Israel and Jewish unity this Sunday, Jan. 11, 3 p.m. at the Sabes JCC, 4330 S. Cedar Lake Road, Minneapolis 55416.

This event is co-sponsored by the United Jewish Fund and Council of St. Paul, The Jewish Community Relations Council of Minnesota and the Dakotas, AIPAC, Minneapolis Jewish Federation, National Council of Jewish Women, Hadassah, Minnesota Rabbinical Association, Christians United for Israel, Minnesotans Against Terrorism, Hillel, Sabes JCC, and St. Paul JCC.

View UJFC’s Gaza Situation web page, with the latest comprehensive situation update, which includes information on military, politics and the status of social needs via our beneficiary agencies in Israel, the American Jewish Joint Distribution Committee and the Jewish Agency for Israel. You will also find resources, stories from the front, multimedia material, news coverage and more – all updated daily.


I have to say, I'm surprised. I mean, I get the standing by Israel thing, generally. But in this case, I'm really floored. It's one thing to defend Israel in general. It's quite another to adopt an "Israel can do no wrong" position and proceed to always, always insist that Israel is blameless. Frankly, the email made me ill.

In contrast, consider what Tikkun has posted on its sidebar:
GAZA CEASE FIRE NOW
CLICK HERE to Sign and Help us circulate an Ad calling on President Obama to use this moment to help bring lasting and just Middle East peace


Since before I've moved here, the synagogue on the corner has had a sign out front that reads something like: "We Stand With Israel and Pray for Peace in the Middle East." I would like to see that sign come down now. All I know is that a temple that can still post that sign in the middle of what Israel is doing right now is a temple I cannot bring myself to step foot in or take my child to.

Tuesday, January 06, 2009

Out, damn spot.

Bean has been begging to use some red hair gel that a friend bought him months ago. According to the description on the package, when applied to damp hair, it will result in red, spiked hair. When applied to dry hair, it will result in red highlights.

FAIL.

As it turns out, when applied to dry hair, it results in globs of red glue in the hair that make the hair stick together in clumps that cannot be touched for fear of turning everything else red. It also results in "over-producted" hair, which is not fun or practical for the average seven-year-old. Fortunately, I was able to get most of it out with a washcloth and dry Bean's hair in time for him to get to school.

Monday, January 05, 2009

Random thoughts.

Well, I realized that I actually still have a week left of break before classes start, so I'm not letting the fact that Bean has to go back to school *this* week throw me. I plan to hit the gym tomorrow, assuming I can still walk (the Taxol-induced achiness has gotten a bit worse over the last couple of hours, but it's still FAR better than last time - I'm not in bed, for example).

Mr. P. is reading "The Curious Case of Benjamin Button" to Bean. I always found that story disturbing and creepy, and I don't understand how it is that it seems to have become a delightful holiday movie, or why Mr. P. thinks it won't freak out Bean. I guess we shall see.

In other news, Bean now has in his possession the game "Operation," which I threatened not to buy after he tormented me by talking about the booger that is one of the many things that can be removed. ICK. I told him if he kept talking about it, I might have to throw up, and he delighted in saying "booger" over and over until I warned him that I would not get the game if he didn't knock it off. Now the question is, Will the child do his homework in time to be allowed to play the game before bed?

Oh, and - Franken won the election, but Coleman, that dink, is going to challenge him in court. I am very interested to see what happens next, and I can't imagine how Coleman isn't going to piss off MN voters by prolonging this...

Finally - I watched a little of Confessions of a Teen Idol - as much as I could bear - and came away feeling very, very sorry for these guys. What moved me to pity was that not once did I hear anyone say anything like, "I really loved acting/singing - it was the one time in my life when I felt like my greatest joy and my career were the same thing. I have always wanted to study the craft, and even though I left the business, I couldn't stay away - I got involved in my kids' school productions and did some community theater. I would just love to have another chance to make my living doing what I love." See, if anyone had said that, I would have thought, well, there's a person who will find happiness. They are in it for the love of the work. But instead, former teen idol after former teen idol kept saying dumb shit like, "I had it all, and now I don't, and I want it again." "It was a great life - I was on top of the world - I had any woman I wanted, and I partied every night. I'd love a shot at that again." Here's a tip, guys: that's not only really boring and shallow, but it also makes you pretty unsympathetic characters. Why on earth would anyone watch this, much less want to see more of you?

(Edited to add a link to a review I really like.)

Sunday, January 04, 2009

Worst birthday ever.

Today was Bean's birthday. Know what we did? Yelled at him all day to finish his homework (which, of course, he had had two weeks to do). We *were* going to go to Target to buy him "Operation" with his birthday money; Mr. P. and I had talked about taking him to feed his addiction at Build-A-Bear Workshop; there was to be cake, or at least the baking of chocolate chip cookies.

NONE of this happened. And do you know why? Because that child refused to sit and do the damn homework. For nearly 8 hours. I did what I always do, and sat down at the table next to him to do my work while he did his. Instead, major drama ensued, with tears and wailing. Eventually, for a break from this, he and I played catch, since he's been begging to do this for weeks and we've not been able to, and since I wanted at least something to go right for him on his birthday. But then, he disappeared into his room to read something that, while I'm glad he is reading it, is most definitely not the book he was supposed to be reading for school.

In retrospect, I'm wishing I had done at 2pm what I finally did at 9pm and simply stand over him, pointing to each math problem and helping him stay focused. The whole thing could have taken about an hour, including the reading of a book that I finally just gave up on, so thrilled I was that he finally finished the two math sheets.

As various relatives called to wish him a happy birthday, he would proclaim that it was "the worst birthday ever!" And I would feel a pang of guilt, or several pangs, until I remembered that we just had a lovely big party for him with the relatives a couple of days ago, and that we will be having a lovely big party for him in a couple of weeks with his friends at one of those places where parents take kids to run around and be noisy and eat cake.

Still, I feel that one's birthday should be special, and I feel like I've let him down. If it hadn't been 3 degrees with a wind chill of -15 today, and if I hadn't felt somewhat crappy, we would probably have made a much bigger effort.

He did get extra stories tonight at bedtime.

For my part, it was a melancholy day. I can't help but to feel vulnerable as my baby turns 7 and I wonder what things will look like for our family in another 7 years. It's also the last day of Christmas vacation (well, for Bean, anyway), which always makes me tearful and cranky. There's nothing like being slapped in the face with the cold reality of January after hiding out in cozy Hannemas and visits with family you don't see frequently enough. So, now I'm back to planning my syllabus (which will probably seem more exciting tomorrow, as it's a job I usually enjoy) for a semester in which I will be having surgery, but I don't know just when, or how long it will take me to recover enough to come back to class (or, the part I can't really bring myself to say out loud, what the outcome will be). A challenge.

Saturday, January 03, 2009

I'm still here, just tired, busy, and trying to relax.

I know I haven't posted in a while - I had relatives visiting, I had Hanukkah and Christmas to prepare for, and, oh, yeah, I spent a couple of days last week in bed in pain from the Taxol that is my final chemo drug. Hopefully that won't happen this time, but it was not unbearable, just approaching unbearable. The thing that was worse was getting sick from the Vicodin - I'll try sticking with Ibuprofen this time.

But anyway - it was a lovely holiday, and yesterday, during my 7-hour visit to my oncologist for lab work, doctor check, and chemo, I really enjoyed watching Season III of Weeds while simultaneously getting high on the Benadryl they were giving me in my IV. Though, I did worry that all the naked people in the episode where Andy does fetish porn (don't ask) might be inappropriate - fortunately, I was in a little room by myself.

I was advised to buy glutamine powder to take to prevent the muscle and joint pain I experienced last time, so I stopped at the hospital pharmacy on the way out, picked some up for $30, and then promptly lost it (I suspect it's still on the floor of the cab, though the cabbie checked and didn't find it - it's also possible that I threw it in the trash, thinking it was my McDonald's bag). So, after spending the entire day at the doctor's office, I got home and started calling around to see where on earth I could find Glutamine powder (answer: Whole Foods). I was happy to get home and into bed.

Today was used up on errands - Bean's guitar lesson, Bean's haircut, lunch at a great bakery that was closed last week when we tried to go there, returns/exchanges at Target, CVS for various meds/vitamins, my office for notes on my syllabus from last year so that I can redesign this semester's class, home (very briefly), back to the big city for my shot and then back to my office for some papers I forgot and then BACK to CVS for random things I needed. So again - good to be home.

I intend to watch the remaining episodes of Weeds tonight while eating cupcakes and Ben & Jerry's Cherry Garcia ice cream. Tomorrow is Bean's birthday, so if I am not in pain, we will play games (and I will try to squeeze in some work on my syllabus). I kinda wish my school had an interim session, and that I was not teaching it...

Saturday, December 06, 2008

This is not the first time I've wondered about my ancestry...

Last week, my fingers turned a much darker color than usual because of the chemo. My doctor informed me that this is something they usually see in African American women. Add to that the fact that I tend to get keloid scars, also something that Black people tend to get, and that members of my family, including me, have curly kinky hair, and I just wonder.

Friday, December 05, 2008

Going commando.

So. Inspired by beautiful bald woman, and tired of endlessly adjusting scarves and hats, I am going commando. I tried it out first at my oncologist's appt today (and he and the nurse both gushed appropriately at my "gorgeous head," which I'm sure they say to everyone, but still, it gave me confidence) and in the chemo room, and then at lunch afterward. I am ready to try it out in more places. And yeah, I'm ready for questions, too. But somehow, this feels like a style choice more than a "trying to cover up my head and therefore looking vulnerable and sick" choice, you know? So the prospect of questions doesn't bother me quite so much.

Too, my doctor said that everything is going really well. That has certainly improved my mood - as has the fact that chemo this time only took one stick (last time, it took 7 or 8 to find a vein, which wasn't awful, but it sure wasn't fun).

Wednesday, December 03, 2008

People will ask.

I saw a really beautiful bald woman today when I was coming out of an appointment at the alternative health center. Her head was perfectly shaped and just the right amount of shiny - she just glowed. (It occured to me later that she might have used some kind of make up on it to get it to look just right.)

My own scalp is less beautiful. I have weird bumps and lumps all over the back of my head, and the first time I saw them (because one doesn't see the back of one's head all that often, and my head *feels* smooth enough), I was shocked, and had to ask Mr. P. if he thought it looked normal. I've sort of decided that it's gross enough that it doesn't qualify for viewing - as in, I will continue to cover my head in public - but I plan to ask a panel of unbiased judges to weigh in.

I also still have random, stubbly hair, because while 99% of it has fallen out, there is 1% still scattered and still hanging on. I haven't been motivated to shave it, but after seeing this woman today, I'm thinking I should.

I'm thinking a lot about bald heads because yesterday I wore my pseudo-dominatrix cap. This is a cap that I've worn out to clubs sometimes, but mostly not worn as it always seems to change the tone of my outfit significantly. I love it, but I always worry that, on me, it sends the wrong message. (Yesterday, I wore it with a thick, wooly sweater and scarf, which muted the message considerably.)

But the cap, like all caps, sits on top of my head, making it clear that there's no hair there. And so I got a fair amount of stares and a couple of questions.

The questions that upset me came from the cashier when I went to buy my lunch. She's someone I've seen around enough to say "hi" to, but I don't know her name, and I'm sure that she hasn't heard that I have cancer. I saw her *notice*, and I knew that questions were coming, and the thing is, damn it, I just don't always want to have to explain things to people. I don't want to always talk about it, and I definitely do not want to reassure people or even deal with their shocked reaction. I sort of assumed that people would mostly not ask personal questions, and mostly they don't, but when it comes to me not having hair and interacting with a young group of people - well, they probably don't associate it with chemo. I expect they simply think, "oh, she shaved her head - I wonder why," and so they ask.

In this case, though, I stiffened immediately when she said, "wait - is your hair pulled back?" And she kept asking, though I kept deflecting, and she finally said, "oh, you just decided to shave it," and I thanked her for my food and left.

I know that in some ways, by wearing revealing headwear, I am asking for it. Of course, people will ask questions. How could I expect that they not? My colleagues, of course, know better (well, probably word has travelled to them, as well), so I see some of them looking but they don't ask me about my hair. But the students who think I've simply made a fashion decision will ask, and I will keep getting defensive and angry because I don't want to hide, but neither do I want to talk about it.

After I cut most people who ask some slack, though, I wonder about those who persist in asking personal questions. How is it possible to focus so much on one's own curiosity and need to know that the other person becomes invisible? You know what I mean:

"What happened to your (insert body part here)?"
"Did you have an accident?"
"What are you?"

And as if this weren't bad enough, the follow-up questions/comments:

"Did/does it hurt?"
"I can't imagine what I'd do if that happened to me."
"Don't you feel like you have to choose one (race, sexuality, gender)?"

America, some of you are not teaching your children that it is rude to ask personal questions. More frustrating: you are not teaching them that when someone doesn't answer their personal questions, they should stop asking.